Friday, July 12, 2019

Scoliosis Diagnosis


I have always known that I have a ‘condition’: that my back is not aligned or symmetrical but I didn't know what it was. In my darkest hours, I always thought I was some kind of deformed and wondered if any man would like me for what and how I am. But following my recent medical check-up, I now know for certain what it is. It’s called scoliosis. If you look around, you’ll probably notice (usually) older women walking around with a hunched back or something that looked like a lump. They would end up bent to one side and in some cases, would have one leg longer than the other. This is scoliosis but because the condition worsens only when one is old, we may have dismissed it as osteoporosis or ‘something normal that happens to old folks’. I won’t talk much about what scoliosis is as you can look it up on the Internet and I’m by no means an expert anyway. I just want to share the start of my journey towards treating my scoliosis.

As fate would have it, I just noticed a physio centre at Ampang Point. I must’ve walked past it a million times before but only really noticed it after dad started sending me to Ampang Point in the morning following my attack in early May. See, I used to just walk to Ampang Point before that and would take a route that didn’t pass the centre. I noticed the centre after my mate shared that her brother had a stroke - also in Ramadan - and I recommended the centre to her. It was only in Syawal when the centre added a banner on scoliosis above its door. So yes, I feel that Allah is guiding me to seek treatment at this centre.

I went to the centre and asked a few questions about scoliosis. The physiotherapist promptly scheduled a session for me and, when I asked, confirmed that PMCare covers the physiotherapy session costs so I then went to a panel clinic and asked for referral. The locum doctor who told me he’s an orthopaedic at PPUKM asked why I wanted to try doing physiotherapy and I told him that I thought it was high time I did something about it. I sure didn’t want to end up like one of those women I mentioned above. In fact, I think Mummy had the same thing but we didn’t know any better then and scoliosis was (and still is) pretty much an unknown thing in Malaysia. Well, I was determined and the doctor agreed to write out a referral letter.

So I went for my first physiotherapy session on 3 July 2019. I had decided I would attend her last slot on any day (she works on Saturdays too but her schedule is already full so I have no choice but to attend sessions on weekdays) so that would mean me taking an hour off work. I’m allowed to take up to 2.5 hours for time-off but I don’t want to take time much time off work. I’m already aware that July and August are busy months at work but hey there’s never a good or bad time to start anything. At my first session, I was told to change and the therapist then measured my back and lumbar and made some notes. I had a file opened to monitor my progress. She proceeded by showing me some exercise steps while lying down, standing and sitting. She showed me how to stand, how to position my hands while standing and sitting and what I should do (open my right armpit, place my left arm on my waist and slightly curve in, etc.). She also showed me what I should stop doing (bending backwards, looking back without turning my body, and standing on one foot which I used to do while brushing my teeth among others). The first session was supposed to be for an hour but lasted 1.5 hours (so much work to do because it’s gone quite bad) and the second session on 8 July lasted 1.25 hours. I feel good after the first two sessions and feel I’ve put in time and effort to help myself. I have also been doing the exercise daily at home and at work. I had my third session yesterday and felt like I was taking one step back for every two steps forward as I may have positioned some limbs incorrectly.

It’s not going to be an easy journey. The therapist told me that for a start, I would have to attend a session twice weekly and after I have shown improvement, she will reduce the frequency to once a week. I know I will face challenges and I will have my up-and-down days, days where I feel like I’ve lost my mojo and feel listless, but I am determined to do it. I’m determined to beat this scoliosis or at least arrest it before it deteriorates further (the therapist was honest enough to let me know that my condition will not be completely cured). There’s no choice: I have to either get down and do it or I will suffer the consequences later and I don't want to suffer the consequences later. The therapist told me yesterday that my sessions now are for the ‘beginners’ and that a more intense (intermediate) series of sessions would follow. Yikes. Oh well.

Still, I am thankful that there is alternative treatment available these days, that I happened to notice the centre, that I did my medical check-up when I did and had my path cleared for me to do the sessions. I am thankful that I have an understanding boss and colleagues who accept that I have and want to do this, and I am thankful that my employer is covering the expenses (it costs RM120/session so if need be, I guess I’d have to be prepared to fork out my own money otherwise and why not when it’s for my own health anyway).

So if you see my standing or sitting in strange positions and positioning my hands and adjusting my body in funny poses at my workplace, in the bathroom, in the lift etc., it’s because I’m in the midst of some exercise. I have a lot on my plate what with taking care of my elderly dad with his own medical problems, taking care of two households and juggling work at the same time so I have to be smart and snatch any free time whenever I get it. And if you wonder about my frequent time-off, it’s because I have to attend my physiotherapy session.

No pain, no gain: that’s my motto. And as Shakespeare said, ‘Self-love, my liege, is not so vile a sin as self-neglecting.’